Alice Miller, 23, met Tom Staniford, 24, online and says that they ‘clicked instantly’ and are now living together in London.
Mr Staniford is one of only eight people in the world with MDP syndrome, which means that since the age of 12 he has been unable to store fat under his skin or even on the soles of his feet.
Alice Miller, 23, met Tom Staniford, 24, online
and says that they 'clicked instantly' and are now living together in
London. Mr Staniford is a para-cyclist who is hoping to representing GB
in the 2016 Olympics
Surprisingly, Mr Staniford also suffers from type 2 diabetes - a disease usually associated with obesity.
Miss Miller, who works for custom bike experts CycleFit, travelled from Sheffield, where she was then a student, all the way to Mr Staniford’s hometown, Exeter, for their first date.
She said: ‘We had clicked instantly online, he was so easy to talk to. He told me about his condition and I’d seen a few pictures of him but I didn’t really know what he really looked like until I met him in person.
‘I remember being worried - like any first date - but I wanted an adventure.
‘It was odd to see him in real life. His appearance did take me by surprise and he was much taller than I had expected.’
Mr Staniford is one of only eight people in the
world with MDP syndrome, which means that since the age of 12 he has
been unable to store fat under his skin or even on the soles of his feet
Mr Staniford also has just 40 per cent of the
muscles of an average man and has poor hearing meaning that he has to
wear hearing aids
‘He was so friendly and we talked for hours over a meal at the local pub. It was just like any normal first date.’
Miss Miller says the pair are just like any normal couple - apart from the fact that they don’t go clubbing or out for late night drinking sessions.
Mr Staniford explained: ‘I don’t like walking and I can’t stand for long periods because of my condition. Even without it, though, I don’t think I’d be very good at clubbing. I’m a professional athlete so need to keep healthy.’
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